Newsflash

We heard yesterday from Peter Bone, the family's MP, that Zac will receive the Monoclonal Antibody Therapy from the NHS, as part of a trial, along with other children who suffer from NeuroblastomaHe will start his treatment in mid-April, possibly in Germany, and then complete it in Nottingham under the care of the specialist who treats him at the moment.

Some of the moey raised so far will be used to pay for flights for the family to Germany, together with accommodation and living expenses whilst Zac is having treatment in Germany. Some will also be used to pay Zac's homeopathic remedies which have helped him so much. The cost of these remedies is not paid for by the NHS. We do not now have a race against time to raise £250,000 needed for treatment in New York. We will however continue to raise money in Zac's name , as the treatment he is going to receive is not a miracle cure. There is still a chance of him relapsing, and there are no relapse protocols in this country, just palliative care, so if the worst does happen he will still need to got to New York for treatment.

Once Zac is completely healthy again and there is no chance of a relapse, the money will be distributed amongst charities that help children with Neuroblastoma and other cancers, and those charities that have helped Zac in his fight. In the event that we do distribute moeny that Zac does not need we will be asking for ideas and nomination as to where it is donated.

To those of you who have donated or taken part in fund raising activities so far, we send you our most sincere thanks, and would ask that you continue your efforts.

Zac's health and wellbeing is of paramount importance to the family, and we will continue to support Bob and Sam in the decisions that they make for Zac

Thank you

 

Fundraising Target

£250000
donation thermometer
donation thermometer
£17000
donation thermometer
7%
Updated:
14/01/2010

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Zac's Fight Appeal

Zac wins fight for life saving treatment

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A little boy has been given the best ever birthday present after finding out he will receive potentially lifesaving cancer treatment.
The family of Zac Knighton-Smith, of Rushden, who celebrated his sixth birthday on Monday, had been in a race against time to raise £250,000 to send him to America for lifesaving monoclonal antibody therapy, which is not available in the UK.

Last summer his three-year-old cousin Chelsea Knighton, of Irthlingborough, died from the same condition.

Yesterday Government ministers revealed Zac will either receive the treatment during a trial in this country in April or if he needs it before then, he will be sent to Germany.
Last Updated ( Wednesday, 17 March 2010 18:10 ) Read more...
 

Trial launched into neuroblastoma child cancer

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Scientists are to test if boosting the immune system can prevent the return of the childhood cancer neuroblastoma.

The disease - a cancer of developing nervous system tissue - is most often found in under-fives and accounts for about a sixth of child cancer deaths.

The European trial builds on early promising results from a US study which found immunotherapy improved the chances of survival from the disease.

Last Updated ( Wednesday, 17 March 2010 17:52 ) Read more...
 

Zachary's Story

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In February 2009 5 year old Zachary Knighton-Smith was diagnosed with Stage IV Acute Neuroblastoma after doctors discovered a 10 cm tumour in his stomach and smaller growths on his thigh and pelvis. While this would be devastating for most families, this was doubly so for his family because 18 months earlier, his cousin Chelsea Knighton, who was 2 years old at the time, was diagnosed with Stage IV Acute Neuroblastoma after a 12cm tumour was discovered in her stomach. Chelsea had chemotherapy to shrink the tumour and an operation to remove it (which wasn’t 100% successful) followed by further chemotherapy. At the same time, the family switched to an organic, low sugar diet and homeopathetic remedies.

Last Updated ( Thursday, 03 December 2009 14:31 ) Read more...
 

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